Showing posts with label Down syndrome. Show all posts
Showing posts with label Down syndrome. Show all posts

Wednesday, January 7, 2009

Our Story is being featured



On KIDZ today.


Click Right HERE to go read!

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Tuesday, December 16, 2008

Is this a different form of Re Gifting?



This is the look on Cheyenne's face two years ago when she got a cell phone for Christmas. Unfortunately, the phone didn't stay her's long. She would call my sister at 1am and for some reason, I felt the need to carry two phones on me at all times. Then Child Husband took the phone. Well, she needs a phone. We don't have a house phone, so this year she is getting a cell phone again. Only it isn't a new phone, it is one I have had around, but it hasn't been used much. I'm going to decorate it with some bling, so it looks cool.

I'm wondering if she will have that same look on her face. Or will it be a shrug and a bland "Gee thanks Mom"

Friday, November 21, 2008

FRIDAY FRAGMENTS


Friday Fragments?

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On Monday, Mercede's teacher called me because she wondered why Mercede was saying "I'm going to go home and smoke cigarettes." over and over... Hmmmmmmmm WHY could that be????
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What do you get when you cross some electrical cords, electrical tape, Styrofoam cooler and a thermostat?

I'm not sure, but I will let you know when ,MacGyver Child Husband gets done with it. As long as it doesn't end up like his project with the pvc piping, flashlights and mini cam.
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Cheyenne probably feels negleted that I don't post about her much. But that is cause she is the "good" one. Except for 6 days out of each month.
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The 18th was my son Christopher's 25th Birthday. I haven't seen him in over 2 1/2 years. He lives in Ohio with his birth mom. My girls and I miss him and need to make a road trip to see him.
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Yesterday I stopped by the Pennies in My Pocket blog and bought $150 worth of certificates to some great restaurants for only $12 dollars. That sale ended yesterday and I almost missed it because I stopped by her blog so late. I've got to remember to hit this blog early everyday cause I'm going to be eating good the next two months :)
UPDATE: Sale on gift certificates now ends on Monday.
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I lost three pounds last week, but then Child Husband brought home Krispie Creme donuts and I ate 5 of them in 12 hours.

Please don't tell my peeps at


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Today, Friday, Mercede came home from school with this shirt, I think her teacher is trying to make a point!





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I think tomorrow, I should get rid of my puking pumpkin. I don't think he will be with us by Thanksgiving. What do you think?


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If your interested in doing a Friday Fragment, join Mrs 4444 at Half-past Kissing Time every Friday.



Monday, October 13, 2008

Welcome to my Ativan induced Blogstophere!


Welcome all my SITSTA's! You came at the perfect time. While you are visiting, I'm might be at the hospital getting fixed, refer to this post for more information on that lovely topic. October is Breast Cancer Awareness month and it is also Down Syndrome Awareness month. Something I know alot about, since my two oldest brats teen daughter's have down syndrome. Mercede is 18 and Cheyenne is 16. They have a rarer form of down syndrome called Translocation Trisomy 21. It is the only form of down syndrome that can be inherited. And you guessed it, I am a carrier. It's all good. God knew I would love one of them so much, he gifted me with two. I'm married to Child Husband, so called because he is 11 years younger than me, and also cause he acts like a baby child. I've got two other children Chris and Aysha and a pet fish that I hate, cause it ate 75 dollars worth of snails, crabs and fish

I started this blog after a friend of mine Meredith adopted two children with down syndrome from the Ukraine. She went thru Reece's Rainbows International Adoption Ministry. I started stalking adoption blogs from Reece's. They are saving children with down syndrome (and other disabilities) from being put in a institution where they may die early from starvation and neglect. I fir
st heard about SITS on a site where a woman had adopted three children with down syndrome. I'm so glad I did. I've made many new bloggy friends but I'll post about that tomorrow on the BIG SITS DAY!!

In honor of it being Down Syndrome Awareness month, I'll direct you to my friend Renee's Blog She has a beautiful daughter Kennedy with down syndrome whom has braved cancer and neck surgery this last year. She is blogging 31 days for T21 and has a contest going on where you can win a gift basket. You can also learn alot about down syndrome over there. Over here your just going to learn how crazy my family is and why I carry a script for Ativan in my purse!!

Oh and I'm going to host a We Were the 80's day on October 30th. It will be a day to show off your stylist 80's photo's (if your were born before then). Just email (email is listed in my profile) me a link to your blog and I'll post it up on the 30th.

Thanks for stopping by. If I make it out of the hospital, you should hear from me by Tuedays night, if you don't, then send money to my family;) Do say some prayers for Tiffany today as she is going into the hospital today for a more serious surgery than I.

Yikes, they posted early today!! I'm not done with my post, oh no!! I'd better get this thing up!

Update: I had no idea they were putting me out and putting a breathing tube in for this procedure. I almost walked out. All is good though. I just slept my SITS day away!! lol

Monday, October 6, 2008

Mercede takes on Richard Simmon's


Mercede was a huge Barney fan while growing up. Needless to say, a mom can only take so much. So I banned her from Barney. Mercede was so upset that she went thru all my video's looking for something she liked. Then in the corner cabinet, under five inches of dust, she found Dancing to the Oldies. For the next few years Mercede worked out with Richard every single day. During the summer she worked out 3 hours a day, while I laid on the sofa eating chocolate and cheese curls shouting "Go Mercede! Go Mercede!" She was his biggest fan........well okay, probably his smallest (wink, wink).


To cut a long story short. I pulled Mercede from school so she could attend a Woman's Conference in our home town that Richard Simmon's was going to be at. Surrounded by hundreds of large women (me being one of them), little, tiny, skinny Mercede worked out with them/us. She was near the front of the stage and Richard called her up on stage. Mercede is so happy to meet him! Oh Look at her face. When she does that mouth open, eye's rolled up toward heaven look, you know that she is on super excitement mode.
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He pulls her to the front of the stage, and then Mercede lost it. She slapped him away. While we didn't get THAT photo, we did get the priceless look on his face after it happened.


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If you ever meet Mercede, she will tell you her version of the story. It goes something like this......

"I slapped Richard Simmon's and made him cry."

While she did slap Richard, and while he did cry. It isn't a whole truth, since he was crying on stage about 15 minutes before she slapped him. But hey, her version makes for a better story.




Friday, October 3, 2008

Awareness

October is National Down Syndrome Awareness Month. I thought I would post some pictures of my girls when they were younger,as I don't have time to do anything else! lol

I also want to say that this is also National Breast Cancer Awareness month. I'm very fortunate to not know very many people affected by this. I do have one bloggy friend whom is a survivor. Give Kris a shout out, she deserves it!






















Monday, September 22, 2008

Mercede update

Thanks for all your thoughts. Mercede is doing well with no issues this weekend. She will be seeing her physician this week.

Friday, September 19, 2008

This is odd

The nurse from Mercede's school today called and said that while Mercede was on a work site, they thought she passed out. They said her head fell forward and they had trouble bringing her too. The nurse thinks if she would of passed out, she would of fallen over, so she think she may have fallen asleep. Mercede has never fallen asleep while doing something, so that would be odd. Her teacher thinks she passed out because she was working with some bolts and then her head went down quick. Mercede started prozac on Wednesday for her OCD, so that could make her more tired. I'm making her an appointment just to check her out. I forgot to include earlier (just adding this in this post now) that Mercede's last blood test showed her having low glucose, and I was told if she seemed dizzy or faint to feed her! Geez, maybe they should of gave her further test.

Here is something interesting. Mercede was born with a Atrioventricular Canal Heart Defect (Cheyenne had the same defect), she had open heart at 6 months of age and then when she was 16 she had to have her mitral valve replaced with a mechanical valve. I just looked up photo's of them. Weird to think of her heart having one of these.





Monday, September 15, 2008

Flood Safety

Yesterday was a day I taught my daughters all about the dangers of flooding.


First thing to teach them was that Flooding makes for good pictures.




Second thing to teach them is that you should always stay behind the police tape.(
especially when there is a policeman behind you while you are snapping pictures)

Third thing to teach them, is to go to the other side of the flooded road (cause the policeman can't get to you there without a boat.)


Fourth, don't read signs, they mean nothing.




Fifth, police tape don't mean a thing either.


"MERCEDE GET YOUR BUTT OVER THAT TAPE NOW!"



Six, get as close to the flooding as you can.....


and snap a bunch of pictures that will make your dad call you and scream at you about the harm your putting your kids in.......





also making sure you get a photo of how swift the water is.

Seventh, take a picture of the people on the other side of the road... and then wonder why they are now crossing the police line.......then notice that the policeman is now not there.


Eight, tell your kids to run like heck cause you heard the policeman either got a boat or is now taking the long route to get to you.



Nine, say a prayer for all those who aren't as fortunate as we are :(

Friday, August 29, 2008

A HUGE RANT


I'm mad tonight, actually I am beyond mad and it is killing me not to have fowl language all across this screen. My sister called me this morning to tell me about Sarah Palin being chosen as Mcains running mate. I wasn't surprised at all, since this rumor had been rampant in my community boards for parents with children with down syndrome. But I knew the news was going to bring controversy, lots of it. First I was mad. I thought, why is this woman with a baby running for VP. After hours of thought, it hit me, that if she was a man I wouldn't think twice of it.

Then tonight many of my friends are angry, they are angry with ABC Charles Gibson. This is what a friend of mine posted on a board and.

After he confirmed Sarah Palin as Mcain's choice, he mentioned her yougest baby Trig. He said "She had a Down Syndrome Child, she and her husband Todd knew she was going to have a DS baby and chose to do so anyway...." WTH!? His tone wasn't so nice......
So I'm guessing Charles Gibson is Anti Choice, why do I say Anti Choice?? Because like some (not all, mind you) so called Prochoice people I have ran into, when it comes to a woman KNOWING and HAVING a child with a disability, they believe that woman should of aborted that child . No offense, but no one is going to tell me what to do with my body. But yet there is this group of so-called Prochoice people, whom are pissed that I and the many other woman, who knew ahead of time that we would have a child with a disability, didn't abort. They don't think we deserved a choice. I have heard to my face, many times, "Why didn't you abort!" Only cow, I thought I had a CHOICE, and I made one!

Also Mr. Dear Charles Gibson, it is "a child with down syndrome" not "A down syndrome child". This child is a person, not an object. Your a professional, learn some people first language.

Now on to another rant with this all, it should not manner that this baby has a disability. Woopeedo, so far, the baby seems healthy, hasn't been in the hospitals, so what is the deal? Let's not throw disability into something where it does not belong. As far as her having a baby and running for VP, yes, I do see concerns there.....BUT, do any of your have concerns about Obama's child? He is running for president, and his wife would be very busy also. So are you concerned about his child? If the answer is "no" then you shouldn't be concered about Palin's.

If Palin were a man, none of these things would manner.


I'm temporary jumping off my soapbox, but after I calm down, I may make other changes in this post. I'm so angry that I can't think straight and the valium hasn't kicked in yet ;)

Sunday, August 24, 2008

Don't you wish you were all this cool!




Tomorrow is Cheyenne's 16th birthday so this weekend we grabbed my little SIL whom is Cheyenne's best friend to celebrate. I wanted the girls to have a memorable night so we spent it at........................................




















the Laundromat, cause I'm such a rocking mom!



Now it ain't all that bad, cause between slaving away at washing and folding clothes (from 8pm til 1030pm), they got to play bumper baskets...

Now today, I did decide to take them out to eat. Yes, I know that nothing could top yesterdays fun. We went to HuHot where we were lucky enough to arrive during the busiest time, and got to sit outside with those little pager do dads. The girls posed for the pictures while the sun burned down on their vampire white skin. Hey nothing like getting a burn waiting for some food.



Mercede was bummed to find out that the cigarettes she found on the bench were empty, but she did enjoy showing us what she planned to do in a week when she turns 18.


We finally get in after obtaining 3rd degree burns, and the girls headed to the line to get their food cooked.





Aw girls, they so sweet, and the guys in back of them are cooking our food. Yum

I didn't realize they were cooking our food in sweat, until I took this photo, and the grill....are there even words??????


Mercede says"Thanks for the food that makes me poop!"



Aidan and Cheyenne dreaming of doing laundry again!

Hope Cheyenne enjoyed her early birthday weekend, cause all she gets tomorrow is a spotlight on my blog ;)